Came to have the work-up day. It was
a full day with various tests to give the doctors a baseline to my
body's performance prior to the operation so that they could compare
me six months later to see how well they wrecked it during the bone
marrow transplant (BMT). The radiotherapy is a sledgehammer approach
to eliminating my bone marrow. There is no other way other then to
expose the totally body to radiation. This not only kills off the
bone marrow but affects the lungs liver and bones amongst others.
First off was the lung function test. I had to blow several times
very hard into mouthpiece connected to a device that determines my
lung capacity, max flow rate and the size of my trachea. The test
went well and I exceeded all the expected results for someone my age
height and weight.
Next was the ECG, electrocardiograph to measure the heart beats to
check for any irregularities. You just lay there for 5 minutes with
electrodes attached all over your body. That went well.
The following test took several hours. I was injected with radioactive
dye which would find its way to my heart. After some waiting I spent
40 mins under a MRI machine that picked up the radiation emitted from
the dye and gave a 3-D image of my heart pumping away. The long wait
was for a heart movie to be taken so they could have some pumping
action for their records.
We had to return back to Haematology to have my bloods taken in addition
to the bone marrow aspirate. I'd only had this done once before in
Epsom hospital when I was first diagnosed, and should remind readers
that this consisted of inserting a needle aprrox. 6 inches long and
2-3 mm in diameter into the back of my pelvis. Bone marrow is then
sucked out and also a core sample of marrow is taken. I can still
remember how painful this was (only a local anaesthetic) and opted
this time to be sedated. However by the time all the tests had finished
it was too late to be given the sedative, so the nurses tried to persuade
me into having the aspirate under local. Eventually I was sold!?@
on the idea, after being convinced that Marco 'The man with the butterfly
touch' is soo good no-one ever complains. Amazingly enough it wasn't
very painful at all, apart from some tenderness in the pelvis. This
is what bone marrow donors have to go through, but they have several
samples of bone marrow taken by syringe from their pelvis, hence they
are given a general anaesthetic.
I had one last consultantion with the doctors, who gave me the date
of Jan 20th for the BMT. I also had to sign the medical consent form
which details every possible risk involved with the BMT. The list
is like a who's who of seriously unwanted complications, and you realise
why not all points are discussed when you are first diagnosed, as
no-one would want to go through a procedure with so many potential
risks. However you need to bear in mind that these are all potential
risks that have been known to occur along with the 'standard' set
of risks that I knew about like the graft vs. host disease (GVHD).
With the work-up day complete all that was required were some final
checks with a dermatologist and also to check where my pilonidal sinus
was removed to ensure there were no signs of it recurring.