I think there may have been a problem
with the server as I wasn't able to upload the previous diary, so
you've got an excellent two for one offer. I've started my third week
of incarceration and the boredom is slowly creeping in. Actually it's
only boring if I don't get up and do something as was the case yesterday.
The bone marrow came and went on Friday. Eventually I got the marrow
just after 8pm. The flight had been delayed and therefore the marrow
was late in arriving. By midnight all the marrow had been infused
and the clock started counting. Counting in terms of waiting for the
engraftment to take place. Although I've now got somebody else's bone
marrow it isn't doing anything inside me except flow through my blood
system.
In the meantime my white cell counts have now fallen to next-to-nothing
so I am officially neutropoenic, meaning I have no immunity or functioning
immune system. This is the delayed effect of the radiotherapy, and
means that I am now highly susceptible to infections and bacteria
mainly from my gut.
The new marrow should take between two to three weeks to engraft itself
into my bone marrow and start working again. I guess it's a bit like
starting a new job, it takes a while to become productive. Therefore
the next two or three weeks are the most critical, because any infections
need to be spotted quickly in order for an appropriate response to
counter the infection.
As a result I am being monitored more closely, and have to report
any changes in the way I feel however small incase that is a sign
of trouble. The only changes I have felt has been the slight ulceration
of the left side of my tongue. By the weekend I should expect my whole
mouth to be feeling pretty sore, so as a precaution, a nasal gastric
(NG) tube was inserted in through my nose yesterday.
The procedure itself is painless except when inserting the tube in
through the nose as it tickles. It's having the tube there permanently
that is annoying. The tube descends through the oesophagus in to the
stomach, but where the tube passes by the tongue at the back of the
mouth it where the real aggravation lies. Every time I swallow it
feels like there's a piece of spaghetti stuck in my throat and you
naturally want to spit it out. It's a precautionary measure in case
when the mouth is ulcerated I find it too painful to swallow, special
fluids can be passed to the stomach via the NG tube in order to maintain
a balanced and healthy nutritional intake. Otherwise one would lose
important nutrients and would be even more susceptible to infections.
I also started the first of three courses of one last chemotherapy
-
Methotrexate.
It's given in a small syringe on days 2, 4 and 8 following the transplant
and should speed up the ulceration of the mouth.
My hair is still on my head, but can be confident that it will soon
fall out. I expected it to fall out last week but the effects from
the radiotherapy on my hair take longer. My weight has fallen a bit.
When I came in I was 90.5 kg and now I'm around 86 kg but I'm still
eating well, so I think some of that is loss of water and muscle wastage.
It'll be interesting to see how much I lose by the time I leave this
place which feels like an eternity away at the moment.