First good news. Staying up to watch
the Australian GP on Sunday morning was worth it as Michael Schumacher
fulfilled expectations by winning it in style. Didn't have the best
sleep afterwards as I was still feeling quite cold in bed. I woke
up quite late and spent what was the most boring day in hospital waiting
to come home. I'm not eating the hospital food anymore, so I had to
drink a couple of Ensure Plus drinks. They are disguised as milk shakes,
but don't taste half as good and contain most of what you need in
a normal diet. To meet the daily requirements I should be talking
six per day, but instead I had breakfast, and managed a couple of
mouthfuls of supper.
The best part of the evening was telling the hostess that I no longer
needed to order any more food, as I was going to leave the following
day. Got a bit of a surprise when checking the bloods as the neutrophils
had jumped to 1.26! It's known that on the weekend different blood
analysis machines are used and there can be some discrepancy in the
read outs, but there was no doubting that this was a good healthy
increase on the day before.
The nurses were pretty busy yesterday, and as I was waiting to be
discharged had no real contact with them for the first time. That's
when you know you're better. I didn't even change the sheets on the
bed. Later on in the evening dad dropped by to take a few things I
had packed. It felt quite strange when packing as the reality of finally
leaving was beginning to dawn.
Parole Day - 4th March. Had a good sleep again probably because I
was safe with the knowledge that I would be out by the afternoon.
The doctor came round on her morning ward visits and was explaining
what to do when the crash bell went for a room on the other side of
the ward. She ran out and the whole ward rushed to the room to deal
with was probably a life threatening situation, as that is why the
crash buzzer is used. Hearing that was quite a shock when you're preparing
to leave the hospital knowing there's a serious case not far from
you, so I wasn't in such a buoyant mood for the first half of the
day.
When trying to pack all the items I realised how much rubbish had
accumulated over the last six weeks. There was just so much clutter
from hygiene to medical products, in addition to all the goodies that
family and friends have delivered throughout my hospitalisation. Before
getting everything ready the bloods came through, and I was a little
surprise to see that the neutrophils had fallen slightly to 1.06,
yet the platelets and red blood had still increased. The doctor assured
me that there was no need to worry as the drop of 0.2 was negligible.
That doesn't sound like much, but when the neutrophil count nearly
doubled last week from 0.12 to 0.22 you realised that that increase
of 0.1 felt like the best thing happening. So all these increases/decreases
are relative, but it's the first time that the neutrophils have shown
any sign of a decrease. I hope when I come in for my out patients
appointment on Thursday things will have returned to the status quo
of daily increases.
Before leaving hospital one of the nurses gave me a Santa stocking's
worth of medicine which is what I'm expected to use for the next few
weeks. I haven't calculated the number of tablets but I bet it's a
pretty large number. The cleaners were already busy changing the room
round, and dusting it from top to bottom ready for the next inmate
to use cell or room 3. After one last goodbye Dad and I were off home.
I bade farewell to Alison next door, then dad and I stopped over at
radiology to say hi to Brett, Jody and Stephanie who were the group
that treated me for the TBI (total body irradiation). It was good
to see some familiar faces and to know that they had been keeping
up to date with my progress on the web site. When I finished my TBI
treatment I took photos of them promising to send them, so they've
been eagerly awaiting them, but I have to confess that writing the
diaries have been work enough.
Then it was off home. Leaving the hospital wasn't as emotional as
I thought. What struck me most was the hustle and bustle of life.
Obviously life goes on, but when you've been in hospital you fail
to appreciate this as you get used to life being focused on the patients
in the ward. I supposed this is testament to the great care and attention
the BMT staff at Hammersmith Hospital give. I also felt quite alien
wearing my regular jeans and jacket after spending six weeks in undergarments.
I've lost nearly two stone, so all my clothes are very baggy. It's
not the way I'd recommend losing weight as there are more practical
and less dangerous means of doing so. However this not just the start
of a new life, but life style and I'm really looking forward to progressing
through the next few months which will be just as critical as the
first.
Arriving at home was a little strange at first but having settled
back in after several hours, I feel so much more alive and alert.
I'm getting so much more exercise than at hospital as I'm climbing
and descending the stairs and doing various things. I can imagine
what life must be like for a hamster, so I'll never have a cage for
a pet. That's how I've felt at hospital for the last month or so.
The best part about getting home was the prospect of a hearty dinner,
so my brother Michael did the deed by making the household favourite
- Fajitas. Although it was a quantum leap from what the hospital can
offer this one time number one meal still tasted rather funny, but
not nearly as weird as at hospital. Still I managed to eat more in
that meal than I've done in all the other hospital meals. That was
followed up by some apple pie. It's probably not necessary to go in
to so much detal but it's these daily routines that we now take for
granted are so special.

I'm
feeling better physically now that I'm at home and no longer feel
like a patient, although I could easily still be one, so it is still
imperative to take things easy and not stress the body too soon with
eagerness. The only weird thing at home is seeing myself in the mirror
with no hair. I'd already got used to this in the hospital environment,
but it feels different being at home so that's the only real adjustment
to make. Also I've got to be careful when standing up because each
time I get a had rush and feel like fainting, so I'm having to adjust
accordingly. The photo here illustrates how I looked on arrival at
home.
The last thing to say, although by no means the least is the thanks
that I owe everybody who has taken care of me during my stay. That
ranges from the nurses to doctors, and radiographers to cleaners.
Everyone has played a part, either small or large in my treatment,
and to them I'm for ever endebted. The most special thanks though
has to go to my donor. I don't know who she is or if I'll ever know
but without her, none of this could have been possible. Thankyou everybody.