20-6-2002

WBC : 3.1
Neut : 2.17
Hb : 142
Plts : 9.7

Day 139:   20th June
Today is a pretty special day. It's like the beginning of the end of the Leukaemia episode. Ed Kanfer, my doctor told me that the last two PCR tests have both shown up a negative, which means clinically speaking at least, I'm leukaemia free. The delivery of the news was just about as undramatic as the transplant itself, but that doesn't reflect the emotion of the situation. It was my most emotional moment since the diagnosis, and at the moment feels a bit unreal. I'll confess and admit I had a joyful tear or two after I left hospital, as this was the one bit of news we'd all wanted to hear since May 2000.

I feel that it's appropriate to reiterate that I'm grateful to everyone who has helped me especially to my family, friends, doctors and nurses and hospital staff through out the last few months and before, and most of all to the German woman who donated her bone marrow that saved my life. It is difficult not to be excited at such news, but we need to wait for a few more negative results to come through before finally saying good riddance to the CML. As it's my father's birthday today, this is like an extra present to him for all his hard work in looking after me and Mum when we were both in hospital.

There's still plenty of progress to be made, so this doesn't mean that I've got a clean bill of health and can reintegrate back into society. There are still a couple of months to go before hopefully that can happen. The situation requires us to slowly reduce the levels of cyclosporine now at 50mg in the morning and 25mg at night until I've come off the drug altogether. If after a couple of weeks there haven't been any nasty reactions then I'll be allowed to go back to work starting on a temporary basis providing work allows this. So the whole thing depends upon how well I react or don't react to coming off the cyclosporine.

Physically at least I'm feeling even better, as seems now to be the case week by week. The endurance isn't quite there but that's hardly surprising considering the haemoglobin count. It is interesting to note, that at the moment I've got the same haemoglobin levels as when I left hospital back in March (that seems ages ago now), yet then I used to get head rushes and felt like fainting everytime I stood up. Now I can go for walks, play squash and don't have any signs of a headrush. The doctor said this is due to the body getting accustomed to having a lower haemoglobin count and oxygen exchange process also becomes more efficient.

My fingernails are growing out, but they are pretty weak at the moment. The radiotherapy damages the cuticles so the fingernails grow back a bit thinner, and as the thin end works its way out the nails become fragile and the thick end can snap off as has already done on some fingers.