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It was bound to happen:
that the updates would become less frequent, but I'm still here
and feeling great. It's been over a month since my last update,
and things have gone the right way. I finally managed to get the
STI ( Gliveec ) that we were hoping for, despite the hospital board
declining the earlier request for the drug.
I first had to try interferon, so I was prescribed interferon for
a couple of weeks to see how things went in terms of any side effects.
Well suffice to say that I found I had the symptoms of interferon
intolerance, therefore I went back for another appointment, in order
to get a prescription for something that would work without hopefully
the same side effects - Gliveec.
I've been taking the STI for two-and-a-half weeks, and so far things
have been going pretty well. The only effects I've had are slightly
puffy/puffy eyes in the mornings. I have not experienced any weight
increase or water retention which seems to be the most common side
effect, and that's good, as I've had to kit myself out with a new
wardrobe and change down two sizes on my trousers.
My last appointment on Monday yielded no surprises, but we still
don't know whether the donor has come forward to donate some more
cells. I've asked my doctor to find out what is going on. I hate
not knowing where I stand. It's been two months since the request
was made, and I feel that there should be some level of communication
to allow the doctor and patient to know what the situation is.
This is the last entry of the year. Tomorrow I'm flying abroad to
the UAE to go back home to my folks and spent a copious amount of
time on the beach relaxing in the usual Chrismas heat. The only
concern is the flight, where I'll have to sit for eight hours amongst
hundreds of strangers of which some will have colds. I'll take a
mask on the flight, and then hope for the best.
PS: I've just found out today that my donor will be donating the
cells on 19th December, which is great news. In the meantime they'll
be frozen and then given to me in March.
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