Well I've officially returned to full time work, and can now
draw a line under the long recovery period that began last year.
It's been a long time coming, but I've been fortunate to have
had a lot of support from work, and therefore no pressure at all
to get back to working full time, so I've made the most of my
time. You do realise how precious time is, and in a way that makes
it a bit more difficult to accept going back to the normal routine
of working life. However, despite the idyllic lifestyle that I've
been lucky to experience for the last several months, there's
no escaping the fact that you've got to face your responsibilities
and earn your crust. There are ways of adopting your 'new' found
philosophies in to your routine, but you still have to just get
back to what you did before.
The transplant seems like such a far cry now, that I can now understand
how other patients' recollections of the event become patchy in
due course. I'm not sure if this is a subconscious process, but
I realise how much I've already forgotten each time I read through
my diary entries.
With the return to work, I can now get on and make plans with
my life, which was something I felt I wasn't able to do whilst
still working on a part-time basis. At work, I keep forgetting
that I've been away for over twelve months, because when I think
back to last year, I don't think of the transplant and recovery
period, I keep thinking about what I was working on the year before
that!
I found the return to work a little daunting at first, partly
due to the high expectations that I was imposing on myself, but
also due to the great time I'd spent in the UAE over Christmas
and Jan/Feb. The period when I was working part-time was the worst,
as I felt stuck in the middle between having no proper direction
at work, and less time to myself at home. I'm sure this was in
large part as a result of the dependence and support of others
that I've had for such a long time. I felt the need to get my
teeth into a new challenge, as I've been feeling a sense of loss
in direction following my return to work.
During the last year, my goals were to make it through the transplant
and recover. Now that on the large part that has been achieved,
I have been sensing the lack of a new goal. It may sound strange,
but having made it this far, I'm now thinking "What next?".
I know that I'm still not clinically cured due to the on going
treatment with the DLI, (although mentally I feel cured) but apart
from that, life is back 100% to normal. In the meantime, I've
still got to focus on ensuring the last remnants of the disease
are eradicated by the DLI treatment.